Resources for metastatic breast cancer
METAvivor raises awareness and funds research for metastatic breast cancer or MBC, with support for three groups: People living with MBC (local support groups and events); MBC researchers; and anyone wanting to take action.
Make Your Dialogue Count offers valuable, patient-centered information and support for physical and emotional health, spirituality, relationships and financial planning.
MBCN is a comprehensive resource for people with metastatic breast cancer, with information on MBC diagnosis, treatment, and clinical trials, plus difficult topics like financial assistance and end of life considerations.
Living Beyond Breast Cancer offers support for the diverse community of all breast cancer patients, because as the site says, "there is more than one way to have breast cancer."
Theresa's Research Foundation was established by Theresa Newby Harpole, who died of MBC in 2013. Visit the site to be inspired by her story, learn about their research, and become an advocate.
MBC Alliance is a consortium of nonprofits that share common goals around MBC awareness, education, and research. If you have stage 4 breast cancer, consider participating in their MBC Connect initiative.
Resources for all breast cancer stages and diagnoses
The Susan G. Komen organization is a breast cancer force to be reckoned with for awareness, patient support, and raising money. Everyone diagnosed with breast cancer should start here, and they offer a hotline if you prefer talking.
For mental, emotional, physical, spiritual and environmental healing, subscribe to Breast Cancer Wellness. Website menu options (as of this writing) say it all: Grow, Nourish, Renew, Inspire, Connect. Plus they sponsor a Thrivers Cruise.
Breastcancer.org helps people make sense of their breast cancer diagnosis. The "day-to-day matters" section gives helpful tips on finances, medical records, talking to loved ones and more.
ABCD is unique in offering free, customized, 1:1 support for breast cancer patients by matching them with a trained mentor/survivor with similar circumstances and interests. Good also for patients who want to give back by being a mentor.
Lobular breast cancer is less common than ductal, which makes LBCA an excellent resource for women (and the rare instance in men) with this subtype of breast cancer that has distinct biological and behavioral differences.
While not as common, men get breast cancer too, which makes the Male Breast Cancer Coalition an important resource. Kudos to all the men who shared a post-surgery picture on the home page! (at the time of this writing)
Triple negative is a form of breast cancer with none of the receptors (ER, PR, HER2) that give doctors and patients more treatment options. The TNBC Foundation website is a valuable resource, including multiple discussion forums.
Because inflammatory breast cancer doesn't present itself as a lump, it often goes undetected by mammography. IBC progresses rapidly and is generally diagnosed at an advanced stage, which is why people with IBC need our support.
Since I was diagnosed at 39, I am considered a young survivor, which is anyone diagnosed under the age of 40. YSC offers local and online networking groups and an annual conference solely for this community.